Saturday, May 16, 2009

My poor little Tyler.....

I want to start by thanking all of you for your concern, well wishes and especially prayers. I have had a lot of people asking for more info regarding Tyler's condition, so I wanted to give an overview.
Tyler started with croup about 2 weeks ago. He has asthma, so he had to be given steriod shots and oral steriods to take care of it. It went away, along with all of his symptoms for a few days. Then his fever returned and it has not gone away since. He has no other symptoms except for the fever, ranging from 101-104, and he been complaining of stomach pain.
We returned to the pediatrition on Thursday afternoon, because his fevers were getting so high, especially at night. The pediatrition did blood work up, cultures, urine test etc. One of the tests came back showing that he had severe inflamation in one or more of his organs. This caused his pediatrition to ask that he be admitted into the hospital for more tests.
We went to the hospital on friday morning, they did every test in the book, including a chest x ray, abdominal ct, kidney ultrasound and more. All the test came back showing no problems except for a bit of mucas in his lungs seen in the chest xray.
99% of the time a high fever in a child is a sign of infection, and they cannot find the infection that is causing his high fevers. He is still running a fever of about 104, and is taking both motrin and tylenol regularly. They did a test for tuburculousis, and we wont have those results until Monday. They want him to see an infectious disease specialist in hopes that they can determine the origin of the fevers because they cannot just let him have fevers forever.
They agreed to release him from the hospital because there was nothing else that could be done until we meet with the infectious disease specialist who is not avaliable until monday.
They sent him home with an extrememly high dose of antibiotics in hopes that maybe they will kill the infection that is hiding in his body. We are in hopes that maybe that will work and his fevers will magically disapear. It is so hard not knowing what it wrong with him. We just want answers.
But for now, we are just happy to have our little boy in his own bed and back at home. He is glad to be home as well and is doing fine, as long as we keep up with the tylenol and motrin.
I will add another update as info becomes avaliable, hopefully by monday. There are a few other blood test that we are awaiting results on as well, that could still show something.
We have been blessed to feel the friendships that we have with so many of you, and are so thankful to have people like you in our lives. Please continue to pray for our little one...

Love,
Laura

1 comment:

Toni said...

Poor little boy! Jack has a fever at the moment, but it's only around 101. Isn't that the worst? I hope they figure it out!